The Donaghue Foundation 2009 Conference
Wednesday, April 29, 2009 8:00am – 2:00pm         Hartford Marriott Farmington - Farmington, Connecticut

CONFERENCE SPEAKERS
Alejandro (Alex) Jadad, MD, DPhil, FRCPC, FCAHS
Alex Jadad is Chief Innovator and Founder of the Centre for Global eHealth Innovation based in Toronto. The Centre’s mission is to help improve health and wellness for all through information and communication technologies (ICTs) that will enable the public (particularly young people) to shape the health system and society. Dr Jadad and his colleagues build virtual tools to support encounters between the public and the health system and interactive tools to promote knowledge translation and mentorship of health professionals. The Centre provides online resources to support social networks, to respond to major public health threats, and to support international collaboration to improve health. You can learn more about Dr. Jadad and his work by going to www.ehealthinnovation.org. To view Alex Jadad’s blog on the global definition of health click here.
Sharon F. Terry, MA
Sharon Terry, President and CEO of Genetic Alliance, is at the forefront of consumer participation in genetics research, services and policy and serves as a member of many of the major governmental advisory committees on medical research. Under her leadership Genetic Alliance brings together diverse stakeholders to create novel partnerships in advocacy, and to ensure that individual, family, and community perspectives are at the center of efforts to improve health systems and use of genetic information. Ms. Terry also oversees Genetic Alliance BioBank which serves as a catalyst for translational genomic research on rare genetic diseases. You can learn more about Sharon Terry and her work by going to www.geneticalliance.org or to see her speak about the launch of the Disruptive Women in Healthcare blog click here.

Ben Heywood
Ben Heywood is Cofounder and President of PatientsLikeMe, the leading online community for people with life-changing conditions. PatientsLikeMe has created a platform for collecting and sharing outcome-based patient data and real life experiences amongst patients. The site has brought about data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits for a growing number of diseases and health conditions. PatientsLikeMe is leading the way in offering better, more effective ways to capture valuable results and share them with patients, healthcare professionals, and industry organizations that are trying to treat the disease. To learn more about Ben Heywood and his work go to www.patientslikeme.org or see an interview with Ben about some of his organization’s recent activities click here.
 

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Photos may be taken at this event and used in Donaghue Foundation materials